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Looking for people with lupus willing to attend medical lectures to provide an insight from a patient’s prospective to medical students about their condition.
Lectures will be held at The Alfred Centre - 99 Commercial Rd, Melbourne. (The Alfred Hospital).
If you are interested email: firstname.lastname@example.org
CLINICAL RESEARCH TRIAL: Belimumab (Benlysta®) Pregnancy Research Study
Participating in a clinical research study contributes to medical knowledge related to the treatment, diagnosis and prevention of diseases or conditions. The results of these studies can make a difference in the care of future patients by providing information about the benefits and risks of therapeutic, preventative or diagnostic products or interventions.
Research is the key to improving the lives of those living with lupus. Now there is a study called the Belimumab (Benlysta®) Pregnancy Registry, which is an observational study that will further evaluate the safety and effectiveness of belimumab (Benlysta®) in women who have been given (exposed to) belimumab (Benlysta®) within the 4 months prior to and/or during pregnancy. The goal of the registry is to evaluate the health of these women until they give birth, and to study the health of their babies until they are 12 months old. Participants will not have to make any extra office visits, take any extra medical tests or medications by taking part in this pregnancy registry.
Learn more about this study evaluating the health of pregnant women with lupus who have received belimumab (Benlysta®) and their babies.
For more information, click on here: belimumab-studies
WEGO HEALTH ACTIVIST AWARDS 2014/2015
Once again we are proud to partner with WEGO Health in the Annual WEGO Health Activist Awards representing the lupus community, world-wide.
WEGO Health is an American based online network comprised of Health Activists – leaders and influencers within the online health community – The Annual Health Activist Awards recognizes and rewards those who have made a difference.
“Bringing Awareness and Recognition
to Our Community”
Encouraging pregnant women to donate their umbilical cord and placenta!
Lupus Foundation will embark on its most ambitious project to date,
‘Increasing Cord Blood Stem Cells in Australia.’ for Lupus Stem Cell Treatment & Research.
This is a major project that will benefit ALL illnesses. Read more under 'Our Services'.
MOOMBA BIRDMAN RALLY 2016
Sunday, 13 March
Who Will Fly and Who Will Flop! Where Man and Bird err Butterfly (sub)merge!
Looking for one or maybe two brave souls to jump for Lupus Awareness! And, a team OR creative individual to put together a lupus flying machine.
The Birdman Rally is a competition for home-made gliders, hand gliders, human-powered aircraft, fan-dangled flying machines and super heroes!
Birdman Rally is a Melbourne institution and is one of the main highlights of the Moomba Festival drawing huge crowds every year.
Let’s make our mark next year and take one big giant leap for Lupus Awareness! Feel free to download and share poster. Email interest to: email@example.com
LUPUS 'WIGS for KIDS' Challenge
Please grow out your hair, for those whose hair remains bare."
Lupus 'Wigs for Kids' Challenge is a permanent ongoing lupus fundraiser. Participation is open to anyone world-wide.
Participants are asked to sponsor and grow their locks to a minimum length of 30 cm and then donate their hair to make medical wigs for the ‘Wigs for Kids’ program supporting kids with lupus, cancer, alopecia areata and other illnesses. As part of the program, the kids are given a voucher to the total amount of $400 to use at selected wig makers.
AND, if you don’t have hair to give, you can still fundraise and we will still provide you with your own fundraising page AND if that seems like too much hard work, you can also donate funds, products for auctions and items for our gift bags for our functions and events.
So, there’s plenty of ways to show your support.
(refer to Lupus 'Wigs for Kids' Challenge for more information)